'Work like you don't need the money. Love like you've never been hurt. Dance like nobody is watching.' - Mark Twain

spontaneous pneumothorax

What is a spontaneous pneumothorax? The condition known as SP is a lung collapse without evidence of trauma (punctures/wounds etc.) to the chest. The condition most often occurs without obvious underlying lung disease. In this instance, it is known as PSP or Primary Spontaneous Pneumothorax. In most cases, primary spontaneous pneumothorax results from the rupture of blebs (air-filled sac on the lung). As a result, air escapes from the lung and enters the chest cavity causing the lung to collapse. Depending on the severity of the incident, various symptoms will be experienced within minutes of the initial collapse. The reason why this occurs is unclear, although spontaneous pneumothorax has been attributed to tall, thin men (between 20 and 40 years of age); smokers; and in some cases, women during their menstrual cycles.

My experiences with Spontaneous pneumothorax

The junior nurses and doctors just don't like patients like me. I am the nightmare patient. Not because I'm grouchy and rude although the anesthetic has been known to make me swear at my poor mother post op, but because I ask so many questions and doubt everything anybody does to me.

In 1997 I was 18 and just finishing revising for my College exams (A levels) and had my first SP on my left side, after several days of trying to rest and get rid of this mysterious problem I went to the doctor who blamed it on exam stress and sent me home. Another 2 weeks went by and I returned to the doc explaining nothing had changed - they listened to the left chest and advised going for xray.

The local hospital saw the sp and tried simple needle aspiration which didn't do much. after a few more days of observation I had my first big drain in. and what an experience that was - they gave me a drug that made me pretty drunk and disorientated and a junior doc tried to insert - he didn't know what he was doing and after taking an hour to complete the procedure they then found out they did not have the right equipment to attach to the drain. so I had a bodged water seal and no pump available to suction the lung back up. God bless the NHS

After little success on the drain I was transferred to Harefield for an operation - mechanical Pluerodesis and stapling. Woke up with self service morphine. I got out after around 6-7 days and thought it would all be over and done with.

3 months later whilst at university in my first few days I had another sp on the other side (r). Went to a local hospital and was observed. Recovered and left the hospital but was advised to have another operation to prevent further sp's

Went back to Harefield and had the same operation on my right side. The surgeon said it was very unlikely to trouble me again.
All went well for the next 7 years apart from the occasional partial collapse which laid me out for a few days. then i had another sp that I couldn't resolve with rest alone. I had another xray after 4 weeks of suffering and was told to get to A+E urgently. this time i had private medical insurance so I hoped for better treatment. The junior doctor used a different drain this time round (smaller gauge). it felt easier to cope with and wasn't as traumatic as the usual one's. I spent 7 days on that drain with suction but nothing was improving. My new surgeon decided to replace my drain with a larger one ! to my horror. After a total of 15 days on suction they decided to operate again.

I transferred to St Anthony's where I had a Pleurectomy + stapling using thoracotomy, I had 7 weeks off work and then reluctantly returned. The next 2 months went ok, then I hit a bad patch again. I've not felt great recently but I'm getting used to having slight setbacks through the recovery process. The first time I had this happen back at college, it took me a full year to return to my former self ! I'm hoping it will be much quicker this time - I've learnt allot over the years about how to manage the up's and down's. Sadly I have grown a passionate distaste for the medical profession especially the surgeon's but that's a whole new story.